HER2 Support Group Forums - View Single Post - Only "slight" decrease on PET....is it time

Chelee · 02-11-2010, 05:34 PM

Jacqueline, My onc did call me because she knows how mad I was at her the 1st time she ignored my TM'ers inching up for almost a yr. Since we know they are sensitive and work for me it is am important tool to use in my trt. I just pray this increase is really due to dying cancer cells and not that trt is not working.

I am trying to set-up an appt. at City of Hope on the 16th with my 2nd opinion onc up there to discuss this. She is the one that recommended I be on the 2 wk dose of "Bine". I have a Rad Onc appt that same day so I am hoping they can fit me in so I can see both doctors the same day since it's a long drive. Then I need to get out to see Dr. Slamon again & see what he thinks? I wish I knew for sure why my TMs jumped up? Of course I'd like to think it's due to dying cancer cells...but with this darned disease who knows.
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Rich thank you for the time it takes to dig up the links and great information for me. It's so appreciated! I've been on overload lately so it's very helpful.

Chelee

02-11-2010, 05:34 PM	#22
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Only "slight" decrease on PET....is it time Jacqueline, My onc did call me because she knows how mad I was at her the 1st time she ignored my TM'ers inching up for almost a yr. Since we know they are sensitive and work for me it is am important tool to use in my trt. I just pray this increase is really due to dying cancer cells and not that trt is not working. I am trying to set-up an appt. at City of Hope on the 16th with my 2nd opinion onc up there to discuss this. She is the one that recommended I be on the 2 wk dose of "Bine". I have a Rad Onc appt that same day so I am hoping they can fit me in so I can see both doctors the same day since it's a long drive. Then I need to get out to see Dr. Slamon again & see what he thinks? I wish I knew for sure why my TMs jumped up? Of course I'd like to think it's due to dying cancer cells...but with this darned disease who knows. ------------------------------------------------------------------------ Rich thank you for the time it takes to dig up the links and great information for me. It's so appreciated! I've been on overload lately so it's very helpful. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.