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Re: UCSF Advocacy and Scientific Retreat
Marcia,
Thank you so much for taking an extensive amount of time to document and pass along to us the news/updates from this leading edge forum.
You should be a medical writer for the layperson. Although I need to head out to work, I found myself glued to your write up. It was so informative!!
Very encouraging to hear about all of the possible approaches to managing this disease. Of course, I really focused on the HER2/HER3 paragraph.
Thanks again and seriously...you should consider a profession as a technical writer.
Well...finally must put down the coffee mug and get dressed for work.
Have a great day....Lori
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2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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