HER2 Support Group Forums - View Single Post - Only "slight" decrease on PET....is it time

Chelee · 02-07-2010, 03:20 AM

Lori, Yes your right...it is working. But obviously I was expecting too much. A complete response would of been good with me. lol (That's not asking too much is it.)

I was happy about the liver. It was only a "low" SUV value last time...but I'm glad to see it's totally gone this time. I was depressed to see the chemo didn't work on the mets to ilium. Darn.

I'll have a better picture Monday. My TMs were down to 23 last time...lets see where they are on Monday? They use to hover at 15 to 18...so that' what I'm aiming for. (I loved your "Chemo wheel of fortune" comment.) lol I'll have to remember that one...use it when I'm down at the chemo room. I like to make ppl laugh down there...they will love that one.
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Rich, Your right...I don't want give up the Navelbine too soon because I might play heck getting them to use it in the future if I need it. The biggest factor with the Navy Beans is I wasn't getting the full dose because my onc wanted to be cheap and not give me the Neupogen. So I will be sticking with this for a while longer now that I'm on normal full dose of "bine" along with Neupogen. Maybe your Mother & I experienced this same dosing problem due to our insurance companies running the show versus our onc's! My pcp of 30 yrs has warned me to be as pro-active as possible when in an HMO! He has been so right.

Is your Mother still on Navy beans now? If so what schedule do they have her on...wkly? And do you know the dose she gets? I also assume she was not getting the Neupogen? Is she now?
Chelee

02-07-2010, 03:20 AM	#14
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Only "slight" decrease on PET....is it time Lori, Yes your right...it is working. But obviously I was expecting too much. A complete response would of been good with me. lol (That's not asking too much is it.) I was happy about the liver. It was only a "low" SUV value last time...but I'm glad to see it's totally gone this time. I was depressed to see the chemo didn't work on the mets to ilium. Darn. I'll have a better picture Monday. My TMs were down to 23 last time...lets see where they are on Monday? They use to hover at 15 to 18...so that' what I'm aiming for. (I loved your "Chemo wheel of fortune" comment.) lol I'll have to remember that one...use it when I'm down at the chemo room. I like to make ppl laugh down there...they will love that one. ----------------------------------------------------------------------------- Rich, Your right...I don't want give up the Navelbine too soon because I might play heck getting them to use it in the future if I need it. The biggest factor with the Navy Beans is I wasn't getting the full dose because my onc wanted to be cheap and not give me the Neupogen. So I will be sticking with this for a while longer now that I'm on normal full dose of "bine" along with Neupogen. Maybe your Mother & I experienced this same dosing problem due to our insurance companies running the show versus our onc's! My pcp of 30 yrs has warned me to be as pro-active as possible when in an HMO! He has been so right. Is your Mother still on Navy beans now? If so what schedule do they have her on...wkly? And do you know the dose she gets? I also assume she was not getting the Neupogen? Is she now? Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.