HER2 Support Group Forums - View Single Post - Only "slight" decrease on PET....is it time

Chelee · 02-05-2010, 11:50 PM

Becky, I'm not on Femara right now. I have been asking about being put on an AI or Faslodex since before my femur surgery. I never got a answer! But since the biospy my Ortho onc took of the mass on my femur...the path report shows I'm now 60% Er pos. where as I use to be weakly pos. So I told my onc shouldn't I be on an AI or Faslodex?! She said you can't when your having rads. (I was set-up at that time to see my radiation onc for my femur.) I don't know if that's true or not...but she said I should not be on it? Being on Femara since before my surgery might of made all the difference.

I did NOT like the rads onc that was going to do my hip and just talked to my City of Hope Ortho yesterday. I mentioned I didn't like this Rads onc and he is setting something up for me.

So can I be on an AI while doing rads or not? I've heard from some that I can...and others say no. Which is it? If you aren't suppose to take an AI while doing rads...then couldn't I of still taken Femara and quit taking it once I started rads?

Chelee

02-05-2010, 11:50 PM	#4
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Only "slight" decrease on PET....is it time Becky, I'm not on Femara right now. I have been asking about being put on an AI or Faslodex since before my femur surgery. I never got a answer! But since the biospy my Ortho onc took of the mass on my femur...the path report shows I'm now 60% Er pos. where as I use to be weakly pos. So I told my onc shouldn't I be on an AI or Faslodex?! She said you can't when your having rads. (I was set-up at that time to see my radiation onc for my femur.) I don't know if that's true or not...but she said I should not be on it? Being on Femara since before my surgery might of made all the difference. I did NOT like the rads onc that was going to do my hip and just talked to my City of Hope Ortho yesterday. I mentioned I didn't like this Rads onc and he is setting something up for me. So can I be on an AI while doing rads or not? I've heard from some that I can...and others say no. Which is it? If you aren't suppose to take an AI while doing rads...then couldn't I of still taken Femara and quit taking it once I started rads? Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.