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Old 01-30-2010, 04:27 PM   #5
Midwest Alice
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Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
Re: re-test tumor block? for er/ep +

Thanks Rich,
I understood some of what I read.
My onc at MDAnderson moved to a new hospital in another far away hospital...so... I have an appt with a great onc at IU simon Cancer Center.( 3 hours North)
I have always felt I needed to take 3 months of Tykerb but never had a serious conversation with an onc.
I also want to find out how the her2 serum test may help to moniter.
From what I read:
Sounds like the tykerb works on the Her1 pathway.

Herceptin may cause the cancer to turn on\ the ER/PR to +.
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Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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