HER2 Support Group Forums - View Single Post - This wk things could change, I'm nervous.

Chelee · 01-29-2010, 03:49 PM

Steph, Ditto what Chrisy said...got a good laugh out of that. Since my onc is on vacation I was able to get ahold of the "NP". She breezed over my PET results but said things looked "GOOD". YEAH! She said the activity that was in my rt axilla and liver area is not showing. No "hot" spots. She didn't mention my femur (bone mets) area so I asked about that and she said my onc would have to sort thur that because it did mention sclerotic changes. But she knows I had extensive surgery so it may be nothing?

I'll feel even better when I get a copy of the PET results...the NP glossed over it. But I'm still happy to hear no more activity in axilla or liver area. So this chemo combo is working.

Chrisy, You definitely win hands down in the "drama" dept. If I was you I would of had my panties in a bunch. lol That's not what I would of wanted to hear when I was there for my PET/CT. What a nightmare! I'm so glad they got it all straightened out for you. Hope you get your results soon...looking forward to more good news. So glad you weren't nuke to death. (Like we don't have enough stress without that.)

Chelee

01-29-2010, 03:49 PM	#42
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: This wk things could change, I'm nervous. Steph, Ditto what Chrisy said...got a good laugh out of that. Since my onc is on vacation I was able to get ahold of the "NP". She breezed over my PET results but said things looked "GOOD". YEAH! She said the activity that was in my rt axilla and liver area is not showing. No "hot" spots. She didn't mention my femur (bone mets) area so I asked about that and she said my onc would have to sort thur that because it did mention sclerotic changes. But she knows I had extensive surgery so it may be nothing? I'll feel even better when I get a copy of the PET results...the NP glossed over it. But I'm still happy to hear no more activity in axilla or liver area. So this chemo combo is working. Chrisy, You definitely win hands down in the "drama" dept. If I was you I would of had my panties in a bunch. lol That's not what I would of wanted to hear when I was there for my PET/CT. What a nightmare! I'm so glad they got it all straightened out for you. Hope you get your results soon...looking forward to more good news. So glad you weren't nuke to death. (Like we don't have enough stress without that.) Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.