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Old 01-29-2010, 07:27 AM   #3
Darlene Denise
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Join Date: Aug 2008
Location: Virginia Beach, Virginia
Posts: 145
Re: Any other Power Port patients here?

Chelee and Courtney: I had my dual lumen Power Port put in last Monday. Had it acessed on that Wednesday for a bone and CT scan. All went well. Like you Miss Courntey, I put it off too. When I went for my last Muga a few weeks ago, it was cancelled because of no vein access. I knew that day was coming, just trying to avoid it! I told my vascular surgeon he better use his best plastic surgery skills and make my port the envy of the chemo room. My last port stood out like I had an MP3 player under my skin. This one looks gooood! Put it in the same place but you can't see it, gotta feel for it! Very happy with its appearance.

Chelee, some facilities don't have trained IV folks available in the nuclear med and scan areas. My suggestion is to call around where you can get scans and see if they are routinely acessing power ports. Whenever you set up your scan be sure to tell them you have a power port. We still have hit and miss access at different facilities, but I found the place and that's where I will be going from now on.

Oh, and I asked for my own power port access kit to carry in my purse just in case they claim they don't have what they need for the scan. I've been told they know how to use it, but the department dosen't stock them yet. Yeah!

One downside, my husband says it's my early Valentine gift. Damn those co-pays!!!

May the Power Port Force be with us...does this make us Power Rangers?

Darlene
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12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY
01/14/08 2 AC TREATMENTS-NOT WORKING
02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS!
05/12/08 HERCEPTIN EVERY 3 WKS
08/22/08 BRAIN METS! 8 <5MM
09/17/08 CYBERKNIFED BRAIN METS
10/20/08 BRAIN METS SHRINKING
12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT
01/16/09 LIVER REOCUR-XELODA/HERCEPTIN
03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ?
3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN
06/08/09 STUPID BRAIN HAS 3 LESIONS
06/29/09 CYBERKNIFE
07/01/09 LIVER REGRESSION NO NEW METS
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11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!!
03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE
05/21/10 NAVELBINE/HERCEPTIN WORKING!
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