HER2 Support Group Forums - View Single Post - This wk things could change, I'm nervous.

chrisy · 01-28-2010, 06:35 PM

Steph you are TOO FUNNY!

I had drama over my scans too...First they Pet/CT was denied by insurance, so they were going to do a Bone scan and CT instead. Then they got the study sponsor to pay for the Pet/CT, and in the end I had all of that still on the schedule!

Sure confused the heck out of the imaging center. They had my back, and noticed that it would probably kill me if they gave me 2 overlapping nuclear trace injections right on top of each other, so they rescheduled everything still all in the same day. Fortunately I was able to straighten them out and ended up getting just the Pet/CT...

I don't know if the double nuke dose would have killed me, but the double scanxiety probably would have.

Still on pins and needles of course...

01-28-2010, 06:35 PM	#41
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: This wk things could change, I'm nervous. Steph you are TOO FUNNY! I had drama over my scans too...First they Pet/CT was denied by insurance, so they were going to do a Bone scan and CT instead. Then they got the study sponsor to pay for the Pet/CT, and in the end I had all of that still on the schedule! Sure confused the heck out of the imaging center. They had my back, and noticed that it would probably kill me if they gave me 2 overlapping nuclear trace injections right on top of each other, so they rescheduled everything still all in the same day. Fortunately I was able to straighten them out and ended up getting just the Pet/CT... I don't know if the double nuke dose would have killed me, but the double scanxiety probably would have. Still on pins and needles of course... __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure