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Old 01-28-2010, 04:50 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Any other Power Port patients here?

I have that newer Bard Power Port that "they" talked me into. I have no veins left so as you all know the Power Port can handle the contrast in PET/CT's, MRI's, etc. But I'm wondering how many of you have had on-going problems with blood return when your port is first accessed each time? They always get it to work...but it's been a pain.

Also I am am frustrated with the fact I can't get anyone to use it when I ask them to. All I get is excuses as to why they can't or won't use it. This port is "hugh" compared to my first one & it's not right that not one person will use the darned thing other then my chemo nurse. I wished I'd stuck to my guns and insisted on the same small one I had the first time since no one will use this port. Am I the only one having these two problems with this Bard Power Port?

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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