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Old 01-25-2010, 03:24 PM   #6
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
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Question Re: NYT article on radiation mistakes/overdoses - very scary

Great to see more articles on this subject.
The thing that strikes me about getting people to recognize the danger, is that the test is so SHORT. You lie down on the table, get positioned, hold your breath a couple of times and then they help you off the table.

How could this be putting us in any danger?? This is a quick and easy test to see if I am OK or not. This is what we stage IV patients have to keep track of our tumors.
The longer we live, the more scans we have in the name of monitoring our disease.

I mentioned the idea of a "radiation" badge to a professional at my cancer center. One thing is that the patients would not be able to wear it in the machines. Since we are out of the presence of the machines the rest of our lives, the badge would only be able to measure the ambient radiation we contact in our daily lives. That is so minimal compared to the scans, that there would be no real value.

That person suggested that if we can get a consistent number for the radiation we are exposed to in the various tests from regular audits as suggested in that article, that can be kept track of and might actually become part of our medical record.

A.A. - you are in the medical records type work, so what do you think of this as a way to keep count, like they have our other labs and vitals charted?
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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