HER2 Support Group Forums - View Single Post - If you have ever had Navelbine, pls reply.

Chelee · 01-20-2010, 09:16 PM

The protocol seems to be different for everyone here...interesting. I just googled Navelbine dosage again & the results all seem to be for wkly...and adult dosage 30 mg. I know my onc started me out at 30 mg wkly but decreased it each wk due to low counts.Now that I'm doing the Navelbine every 2 wks...my dosage is 40 mg. I hope that's enough to do it's job?

Rich, it sounds like your Mom's onc started out the same way mine did...then switched to every 2 wks due to low counts. Why didn't your Mother's onc want to use Neupogen? Was there a reason given?

Pam, Missy, & Shelia, thanks for all the feedback. I really appreciate it. Shelia your body is one tough cookie if your counts could tolerate both Navy beans & Taxol. Especially the Taxol. Unreal! What do you eat...you must be doing something right. lol

Missy I had no problems with my stomach on the wkly...but once I went to the 2 wk dose I have had to take protonix. About day 3 thur day 6 I have a slight nausea feeling and end up with heartburn if I'm not really careful about what I eat. Never happened on the wkly dose.

Colleen that is good news about your scans. You have gotten a long run out of Navelbine...that gives me hope. Thanks! Has the Navelbine caused any of you neuropathy? If so...how bad has it gotten? Seems I am experiencing it already in both hands. But just the ring & baby finger of each hand.

Chelee

01-20-2010, 09:16 PM	#1
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: If you have ever had Navelbine, pls reply. The protocol seems to be different for everyone here...interesting. I just googled Navelbine dosage again & the results all seem to be for wkly...and adult dosage 30 mg. I know my onc started me out at 30 mg wkly but decreased it each wk due to low counts.Now that I'm doing the Navelbine every 2 wks...my dosage is 40 mg. I hope that's enough to do it's job? Rich, it sounds like your Mom's onc started out the same way mine did...then switched to every 2 wks due to low counts. Why didn't your Mother's onc want to use Neupogen? Was there a reason given? Pam, Missy, & Shelia, thanks for all the feedback. I really appreciate it. Shelia your body is one tough cookie if your counts could tolerate both Navy beans & Taxol. Especially the Taxol. Unreal! What do you eat...you must be doing something right. lol Missy I had no problems with my stomach on the wkly...but once I went to the 2 wk dose I have had to take protonix. About day 3 thur day 6 I have a slight nausea feeling and end up with heartburn if I'm not really careful about what I eat. Never happened on the wkly dose. Colleen that is good news about your scans. You have gotten a long run out of Navelbine...that gives me hope. Thanks! Has the Navelbine caused any of you neuropathy? If so...how bad has it gotten? Seems I am experiencing it already in both hands. But just the ring & baby finger of each hand. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.