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Re: What worked for you?
Hi Adrien - I am sorry to hear that you are dealing with liver and lung mets. What a crappy way to start the new year. Jackie is right, I have successfully battled both. When I was first diagnosed in April 2008, I had too many liver mets for them to even count and a smattering of spots on my lungs. We did an aggressive treatment of Herceptin, Cytoxan and Taxotere - every two weeks for 7 rounds. Then we dropped the Cytoxan and did one more with Taxotere. This combo got me almost to NED when it spread to my brain. So then I added Tykerb and eventually Xeloda to the Herceptin. That kept things in check for a long time - until this past October when I had some slight progression in my lung nodules. Now I am on Herceptin and Gemzar and my markers are dropping. Haven't re-scanned yet so I don't know for sure that it is all gone but I feel great and am confident things are going well on the inside. Gemzar is the easiest chemo I've ever been on.
Praying you find your magic bullet! Let me know if there is anything I can do!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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