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Chelee · 01-09-2010, 02:28 AM

Flori, You just gave me peace of mind. The mornings I was waking up with a rapid heart beat and heart pounding in my head was the the same day after my Neupogen injections. Those were by far were the worse...wake up out of a dead sleep with my heart pounding. My counts tank so fast on Navelbine. I have looked at my labs and I have been anemic. I noticed now that I'm in my 2nd week since my last infusion of navy beans my counts are back up and I've been fine. So that has to be what it is. That stinks that my onc didn't mention that possibility to me...just let me sit and worry about it. I told her I'd been really thristy too and thats not like me. She just said I'm unusal and to go see my primary.

I do have a cardiologist I can go see. He's great...love the guy. Went to him the first yr I did herceptin to ask some questions. Very patient doctor. Explains things in detail and gives you all the time you need. I take my MIL to him. In fact she wore one of thos A-Fib moniters. High tech!

Thanks so much Flori...I am sure that is exactly what the problem is. What a relief. You made my day.

Chelee

01-09-2010, 02:28 AM	#7
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Had my ECHO....now what? :( Flori, You just gave me peace of mind. The mornings I was waking up with a rapid heart beat and heart pounding in my head was the the same day after my Neupogen injections. Those were by far were the worse...wake up out of a dead sleep with my heart pounding. My counts tank so fast on Navelbine. I have looked at my labs and I have been anemic. I noticed now that I'm in my 2nd week since my last infusion of navy beans my counts are back up and I've been fine. So that has to be what it is. That stinks that my onc didn't mention that possibility to me...just let me sit and worry about it. I told her I'd been really thristy too and thats not like me. She just said I'm unusal and to go see my primary. I do have a cardiologist I can go see. He's great...love the guy. Went to him the first yr I did herceptin to ask some questions. Very patient doctor. Explains things in detail and gives you all the time you need. I take my MIL to him. In fact she wore one of thos A-Fib moniters. High tech! Thanks so much Flori...I am sure that is exactly what the problem is. What a relief. You made my day. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.