HER2 Support Group Forums - View Single Post - Invasive Lobular Cancer HER2+ve

Jackie07 · 01-04-2010, 06:28 PM

You are welcome.

2nd opinion is always good idea. My oncologist never communicated 'fully' with me. My BC was weakly ER+ (5%? 10%) in 2003 and he told me (during the first meeting when I was taking ample notes) mine was ER-, so I couldn't use hormone therapy. But after I completed chemo and radiation, 2, 3 different medical providers mentioned about taking Tamoxifen because my BC was ER+. I thought they were 'crazy'! I finally called the oncologist's office and got it clarified and started taking Tamoxifen.

After the chemo for my recurrence in 2007, my hormone status had changed to ER-. It was not communicated to me until I (just last month) inquired about aromatease inhibitor after Tamoxifen and then was told that it was not necessary.

Looks like you have caught it early (node negative). Andrea Barnet Boudin had her ILC treated successfully. She hasn't have time to get on the Board lately, you might want to send her an e-mail.

01-04-2010, 06:28 PM	#4
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,809	Re: Invasive Lobular Cancer HER2+ve - anyone else? You are welcome. 2nd opinion is always good idea. My oncologist never communicated 'fully' with me. My BC was weakly ER+ (5%? 10%) in 2003 and he told me (during the first meeting when I was taking ample notes) mine was ER-, so I couldn't use hormone therapy. But after I completed chemo and radiation, 2, 3 different medical providers mentioned about taking Tamoxifen because my BC was ER+. I thought they were 'crazy'! I finally called the oncologist's office and got it clarified and started taking Tamoxifen. After the chemo for my recurrence in 2007, my hormone status had changed to ER-. It was not communicated to me until I (just last month) inquired about aromatease inhibitor after Tamoxifen and then was told that it was not necessary. Looks like you have caught it early (node negative). Andrea Barnet Boudin had her ILC treated successfully. She hasn't have time to get on the Board lately, you might want to send her an e-mail. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 01-04-2010 at 08:06 PM..