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Chelee · 12-30-2009, 08:04 PM

Hi Steph, I did have a discharge nurse come in to see me before I left. She gave me two discharge forms with lots of boxes checked off. Like I can life up to 5 lbs...resume activities as tolerated..exercise as tolerated, blah blah. The "only" written instructions was to put dry dressings to cover the hole that had the JP drain. Keep it covered until it quits draining. A list of my medications & when to take them.

The back of the other form just had things circled as to when I should call City of Hope nursing triage if something doesn't seem right. No mention of physical therapy, exercises...absolutely nothing. The discharge nurse did show me how to give myself Lovenox injections & told me to call her if I had any questions. No mention of PT coming out to my house or on the two forms she had me sign? I was asking for PT from the first morning after surgery. It was my biggest and most constant complaint!

As to food I'll admit I haven't done well in that area. I really haven't had much of an appetite...not sure why? I'm home alone all day and at first it was next to impossible to go cook myself something or even fix a sandwich. Now I can get around better on my own but I just haven't wanted to eat much. I know I need to work on that.

I noticed I did not get a call back from my Orthopedic's nurse today like she promised. She was suppose to let me know exactly what his doctors orders were and see why I did not get PT. She is always good about following thru and calling me back...odd that she didn't this time? Someone is going tell me why I didn't get any PT...or any other type of therapy for that matter. I bet it was about keeping cost down...I'm an expensive patient...so they will cut corners every chance they can at MY expense. Let me suffer. (I think it's beyond cruel.)

Chelee

12-30-2009, 08:04 PM	#19
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: I'm so tired of this! (Venting again!) Hi Steph, I did have a discharge nurse come in to see me before I left. She gave me two discharge forms with lots of boxes checked off. Like I can life up to 5 lbs...resume activities as tolerated..exercise as tolerated, blah blah. The "only" written instructions was to put dry dressings to cover the hole that had the JP drain. Keep it covered until it quits draining. A list of my medications & when to take them. The back of the other form just had things circled as to when I should call City of Hope nursing triage if something doesn't seem right. No mention of physical therapy, exercises...absolutely nothing. The discharge nurse did show me how to give myself Lovenox injections & told me to call her if I had any questions. No mention of PT coming out to my house or on the two forms she had me sign? I was asking for PT from the first morning after surgery. It was my biggest and most constant complaint! As to food I'll admit I haven't done well in that area. I really haven't had much of an appetite...not sure why? I'm home alone all day and at first it was next to impossible to go cook myself something or even fix a sandwich. Now I can get around better on my own but I just haven't wanted to eat much. I know I need to work on that. I noticed I did not get a call back from my Orthopedic's nurse today like she promised. She was suppose to let me know exactly what his doctors orders were and see why I did not get PT. She is always good about following thru and calling me back...odd that she didn't this time? Someone is going tell me why I didn't get any PT...or any other type of therapy for that matter. I bet it was about keeping cost down...I'm an expensive patient...so they will cut corners every chance they can at MY expense. Let me suffer. (I think it's beyond cruel.) Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.