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Old 12-19-2009, 06:54 PM   #3
Carol.hope
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Join Date: Sep 2005
Posts: 90
Re: research into possible way to reverse chemo brain toxicity

Barbara,
There is no doubt that Chemo Brain is real! I am still working on recovering from it, 3-1/2 years past the end of treatment.

One thing that helped me was reading Brainlash by Dr. Gail Denton. (www.Brainlash.com). I tried to talk her into writing a book for chemo brain patients, but she talked me into writing it, with her help. So we've been working on it for about 8 months and hope to have it out in early 2010 (www.BeyondChemoBrain.com).

There are two other books on chemo brain, both out in 2009 (finally!), but both a little hard to read if you have chemo brain...

It's real, you're not stupid or lazy, and it's ok to get help. In a 2007 survey by Hurricane Voices,
Of the 102 respondents 5 or more years out from treatment, 92% were still impacted by cognitive changes—61% at the same level they first experienced following treatment. Only 8% reported that their symptoms had completely ‘gone away.’

You are not alone. Take care.

Carol
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Carol
Lyons, CO

dx June '05 at age 55
Stage 1, 1.5cm
ER+++, PR--, HER2+++
Lumpectomy, A/C, T/H
Herceptin stopped due to low LVEF (35%)
2010: NED, but continuing major chemo brain injury
www.BeyondChemoBrain.com
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