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Re: Chelee - Clinical Trial at COH - do you qualify?
Steph, Actually I don't feel like I have any energy left...but I better find some. I've never felt so drained mentally and emotionally. Every time I think I have a plan some other challege has been thrown at me. I have been set to start chemo 3 or 4 times now and something always stops it. But after being put off so long I do want to make the "right" decision/choice for myself. I've been so worried about my cancer spreading in all this down time.
Chrisy is so right about the trial locations....they aren't all listed...you really do have to do some digging around. I found that out after Dr. Slamon told me about the TDM1 trial he wanted me in. The two locations he told me about weren't mentioned on the clinical trial website. My biggest problem right now is I feel like I have to do something now. You reply & support will give me that extra boost I need to make the call. Thanks Steph!
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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