|
Re: The weakly er+ group
Hi everyone,
I had asked my oncologist at Stanford to retest my hormonal status after my surgery. Because I had no tumor left in the breast, she said that the only way to retest it is to get the original tissue block from my diagnostic biopsy back in February.
I got the tissue block from the clinic where I was diagnosed, and yesterday found out that my ER status came back as 30% (2+). I was 5% before. My oncologist told me that it's common to have false negatives with the hormonal staining test.
Not sure how this changes things, since I'm already on Tamoxifen. She said that I may be a candidate to take an AI for 5 years after my 5 years of Tamoxifen. I asked her about ovarian suppression but haven't been able to do much research on it yet. She said I need to consider all the side effects and the fact that the debate on whether is beneficial for someone in my position is still ongoing.
Has any of you have your biopsied tissue restained? What did you find out?
Thanks!
Marcia (bejuce)
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
|