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Old 11-27-2009, 08:57 PM   #13
freyja
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Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
Re: The weakly er+ group

Dianne,
Good question. I am weakly ER+ and do NOT do any form of hormone therapy. So far so good. I am 32 years old, and I feel that screwing with my hormones could have more serious side effects than benefits. I am considering starting Neratinib since I'll most likely qualify for the trial. It targets the HER2 and since I'm strongly HER2 positive and weakly ER+ it makes a lot more sense to me to do the Herceptin or the Neratinib.
I work with a naturopathic doctor and try to control my estrogen balance with diet and supplements. Let me know if you want to know more about that.
Celeste
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"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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