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Re: Chelee, Thinking About You
I finally got home from the hospital on Monday. (11-23) What was to be at most 3 days, turned into 5 days. As I already mentioned I was told I lost alot of blood. I'll tell you...as much as I wanted to do Tykerb right now I can't even imagine that now. I have a high tolerance to pain and this has been just excruciating. I can hardly put any weight at all on my right hip...pure torture. They sent me home with injections of blood thinners for 7 days. Usually they do that while you "in" the hospital...not sure why I get mine when I leave?
When it comes to them not feeding me...not sure what the deal was there? I thought I was on an all liquid diet since I was nauseated after surgery? But later I found out that I was on a "normal" diet and they didn't know why I wasn't given any food? So it was a little over two days before I got to eat...I was starving! (Maybe they thought I could afford to lose a little.) lol After I called my Ortho's office and told his nurse I hadn't had any food in two days...nor was I getting any physical therapy did I finally get to eat. The physical therapy was a joke...I got it twice the entire time I was there. My mother had two hip surgeries and they had her up right away and moving at least 3 times a day...along with excersise to do in bed. I was given no instructions on what I should and shouldn't doing? I was very pro-active about all this and so was my husband...not sure what the deal was.
Anyway...I'm home...and I can't tell you all how happy I was to find all the replies. This has been a lonely road for me with the exception of you guys. I can't tell you all how much it meant for me to find all your well wishes, support, & prayers. Thank to all of you for thinking of me and keeping me in your prayers...I sure need them.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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