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DianneS · 11-21-2009, 10:46 PM

Hello, Jackie,

I had a hysterectomy in 1998 and ooporectomy last year. Everything was benign. I hope you're having a laparoscopic hystero-oophorectomy. They are much less painful than having one's abdomen ripped open like I had for the ovaries because the cyst was the size of a golfball (benign) but we did not know it at time of surgery. I think you are wise to have surgery, altho I read that Tamoxifen has only a small risk of ovarian cancer. Why are you on it so long?

Sweetie, you are certainly NOT a hypochrondriac! Who called you that? Sounds like you're having some issues with your onc? I do suggest a 2nd opinion before surgery of any kind...wish I had done that but I live in a remote are where that's not possible.

Being your own advocate is a very good idea, you know your body better than anyone. I, too, am tired of being a guinea pig and taking medicine that no one can tell me if it's even going to work for me. Meanwhile the pharmacies make out like crazy.

Best of luck and a speedy recovery if you do the surgery in Dec.

Dianne

11-21-2009, 10:46 PM	#4
DianneS Senior Member Join Date: Aug 2008 Posts: 327	Re: Had to stop Tamoxifen Hello, Jackie, I had a hysterectomy in 1998 and ooporectomy last year. Everything was benign. I hope you're having a laparoscopic hystero-oophorectomy. They are much less painful than having one's abdomen ripped open like I had for the ovaries because the cyst was the size of a golfball (benign) but we did not know it at time of surgery. I think you are wise to have surgery, altho I read that Tamoxifen has only a small risk of ovarian cancer. Why are you on it so long? Sweetie, you are certainly NOT a hypochrondriac! Who called you that? Sounds like you're having some issues with your onc? I do suggest a 2nd opinion before surgery of any kind...wish I had done that but I live in a remote are where that's not possible. Being your own advocate is a very good idea, you know your body better than anyone. I, too, am tired of being a guinea pig and taking medicine that no one can tell me if it's even going to work for me. Meanwhile the pharmacies make out like crazy. Best of luck and a speedy recovery if you do the surgery in Dec. Dianne __________________ Three years and 5 months NED Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm Grade 3 8/9 Richardson/Bloom test ER+ weakly positive Alred Score: 4 (suggesting I would strongly benefit from hormone therapy) PR-, HER2 positive +++ No vascular invasion No lymph nodes involved Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!