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Old 11-21-2009, 10:01 AM   #4
hutchibk
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Join Date: Oct 2005
Posts: 3,519
Re: I'm back (sorry to those of you that were glad to see me go)...but I'll be gone a

Hi Rhonda - Nothing underhanded or devious intended by what I posted, so it wasn't snide. Snide in my book is an unregistered guest who demeans and mocks without showing their face. Rhonda, with my eyes, I have seen no posts here that have beat you up personally for posting anything. I consider your links and threads informative. It is perfectly fair and expected for folks to offer a dissenting opinion from the experts and from each other. My gosh, we don't all walk in lockstep. But unless I am missing something, I have not read where one person beat up on you at all. You however did fallaciously accuse me of something that I am compelled to respond to. I do not ever post my political views here, nor do I demean or mock. I have included in a post a time or two about how differing philosophies play into the health debate in my opinion, and I have posted my views about how devastating the trumped up and expedient "healthcare overhaul" will be in my opinion, but my posts never include derogatory words or opinions about ideologies, political parties, left vs right, liberal vs conservative, etc. I NEVER ever go there in this forum. You must be thinking of someone else. And as this is an archived forum, it is very easy for me to support myself on this point. There are some who bleed their politics whether or not they mean to, and others who strive to keep it reined in and appropriately undramatic and unemotional. I prefer and strive to be the latter here (perhaps not perfectly, I condede) and based on your above post I would guess you prefer to be the former. Also, it's very odd that you took my opinion of the NY Times well documented plagiarism and fabrications over the last several years as a personal attack on a political ideology in favor of a different news source's perceived political bias. Wow, that's quite an exaggerated stretch. I never mentioned bias, I mentioned plagiarism and fabrication. Be careful of reading into something with your own filters on... I don't put much stock in either, I gather my info from a multitude of sources. I just don't read the NYT much because I quit trusting it years ago for various reasons.

What a strange post my lady. But if you need me to be your punching bag, go for it. I don't get offended by anything... I can take it if it makes you feel better and helps you release some pent up energy. I hold absolutely no ill feelings toward you even if we disagree about something, so punch away. I'll duck when I can and just absorb all the other blows that I don't see coming.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."

Last edited by hutchibk; 11-21-2009 at 03:41 PM..
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