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StephN · 11-20-2009, 12:57 PM

Regarding the question of whether I think Dr. Love has grown horns. Certainly NOT.

My "itch" with her is that she may be avoiding full disclosure as to her interest in backing the revised guidelines. On her Army of Women website under the Research tab the information is there about the Intraductal Approach symposiums and even announces the next one in 2011. There is a grant application for anyone who would like to do more research in that vein, so it is still being encouraged and funded. Bravo, go for it.

My compassion for a whole generation of women out there leads me to question further what and who is behind the announcement, as well as attempting to peer into the void to discern alternative possibilites.

I would LOVE for a new method of detecting breast cancer that is not invasive and gives no radiation to become the norm. I know there are also blood tests being studied, because I have participated in blood screening research for 6 years! My understanding is that the preliminary of that study was presented at ASCO this year and futher data will be presented next year.

As for me, I am way past the group of younger women who may be denied screenings in the future. I will always have screenings as I only had lumpectomy and still have breasts, keeping me at risk for more cancer.

11-20-2009, 12:57 PM	#9
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: PJ Hamel Regarding the question of whether I think Dr. Love has grown horns. Certainly NOT. My "itch" with her is that she may be avoiding full disclosure as to her interest in backing the revised guidelines. On her Army of Women website under the Research tab the information is there about the Intraductal Approach symposiums and even announces the next one in 2011. There is a grant application for anyone who would like to do more research in that vein, so it is still being encouraged and funded. Bravo, go for it. My compassion for a whole generation of women out there leads me to question further what and who is behind the announcement, as well as attempting to peer into the void to discern alternative possibilites. I would LOVE for a new method of detecting breast cancer that is not invasive and gives no radiation to become the norm. I know there are also blood tests being studied, because I have participated in blood screening research for 6 years! My understanding is that the preliminary of that study was presented at ASCO this year and futher data will be presented next year. As for me, I am way past the group of younger women who may be denied screenings in the future. I will always have screenings as I only had lumpectomy and still have breasts, keeping me at risk for more cancer. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018. Last edited by StephN; 11-20-2009 at 01:00 PM..