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Old 11-14-2009, 05:00 PM   #9
Lien
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Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
Re: New developments might change everything?

Dear Chelee,

I'm so sorry you are going through all this. Your reasoning seems right: what's the use fixing your leg if you are dying from cancer? Perhaps you should send your onc an old fashioned snail mail letter asking her this.

Something like:

Dear Dr. xxx,

As I haven't been able to talk to you recently, and as I don't feel you are hearing what I'm saying, I decided to write to you. I have some very serious concerns about my treatment plan and am not getting the answers I need to help me make a decision.

I am worried that my cancer is spreading rapidly and I don't feel that your treatment plan is adressing that issue. I don't understand why I can't have chemo or Tykerb right now. I know others who have had chemo right before and soon after complicated surgeries. If my leg gets fixed but the cancer spreads, I'm in more trouble than I was before.

I am very upset and feel I am not receiving adequate care. If you think you are doing the right thing, please explain to me why I can't get the treatments others are getting and that Dr Slamon, who did a second opinion, recommended.

Yours sincerely,....


I think I would hand deliver the letter and demand a receipt. This is ridiculous. If she can't offer the kind of treatment you need, the least thing she could do is sit down and explain it properly.

This is such a tough situation and I don't blame you for feeling very frustrated, upset and angry.

Hugs

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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