HER2 Support Group Forums - View Single Post - 2nd Chemo Update

Chelee · 11-13-2009, 11:47 PM

Vicky, I had some serious constipation issues with TCH also. What worked best for me was Senokot. It's gentle enough without having to make a run for the bathroom if you know what I mean. Like you I didn't have much of an appetite either...in fact I lost 37 lbs during trt. Food just did not sound good, or taste good. Everything was disgusting to me. I literally had to make myself eat most the time...with the exception of the wk prior to going back for my next infusion.

As to the rib pain that seems to be very common with so many of us after mastectomy. I know I had it and was always worried it was mets...but it wasn't. So yes...it's normal. Of course you can always check with your onc when in doubt if it gets to bothering you too much.

I had a pretty rough time like you are...just listen to your body and rest/sleep when you have too. I know it's not easy...but hang in there and it really won't be long before you have this all behind you. Take one day at a time...you will get thur this.

Chelee

11-13-2009, 11:47 PM	#3
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: 2nd Chemo Update - Rib Pain Question Vicky, I had some serious constipation issues with TCH also. What worked best for me was Senokot. It's gentle enough without having to make a run for the bathroom if you know what I mean. Like you I didn't have much of an appetite either...in fact I lost 37 lbs during trt. Food just did not sound good, or taste good. Everything was disgusting to me. I literally had to make myself eat most the time...with the exception of the wk prior to going back for my next infusion. As to the rib pain that seems to be very common with so many of us after mastectomy. I know I had it and was always worried it was mets...but it wasn't. So yes...it's normal. Of course you can always check with your onc when in doubt if it gets to bothering you too much. I had a pretty rough time like you are...just listen to your body and rest/sleep when you have too. I know it's not easy...but hang in there and it really won't be long before you have this all behind you. Take one day at a time...you will get thur this. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.