HER2 Support Group Forums - View Single Post - New developments might change everything?

Chelee · 11-13-2009, 08:46 PM

Goodness, 178 page views and one reply? Not much anyone can say I suppose. (I'm just stressed...o'well.)
Brenda, Thanks so much for your reply about the Tykerb issue. I had so hoped Dr. Slamon's office would return my call so I could ask their opinion if I would be alright adding Tykerk/surgery? But they never called back which is not like them?

Elaine on this board said she had a complete hip surgery done after a bad car accident. They let her do chemo & she was fine. Plus she was doing chemo drugs that are hard on the counts unlike what I'm asking for. Tykerb wouldn't seem to be a problem? Unless the hand - foot syndrome I read about would be a concern? But since no one down there talks to me how would I know?
Today I read my HMO book and it says "If you and your doctor don't agree, then I have a right to ask for a written notice of why I'm being denied the care I felt I needed? It says she has 48 hrs to respond. I called my case manager today and told her from now I want everything in writing from my onc as to her decisions concerning my care...especially since she doesn't bother to talk to me.

I was at my cancer center today and my onc KNOWS I'm concerned about a new node in the clavical area & she ignored me again. She also refused my CA 27.29 again today. Whatever.
(Thank you Brenda!)

Chelee

11-13-2009, 08:46 PM	#3
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: New developments might change everything? Goodness, 178 page views and one reply? Not much anyone can say I suppose. (I'm just stressed...o'well.) Brenda, Thanks so much for your reply about the Tykerb issue. I had so hoped Dr. Slamon's office would return my call so I could ask their opinion if I would be alright adding Tykerk/surgery? But they never called back which is not like them? Elaine on this board said she had a complete hip surgery done after a bad car accident. They let her do chemo & she was fine. Plus she was doing chemo drugs that are hard on the counts unlike what I'm asking for. Tykerb wouldn't seem to be a problem? Unless the hand - foot syndrome I read about would be a concern? But since no one down there talks to me how would I know? Today I read my HMO book and it says "If you and your doctor don't agree, then I have a right to ask for a written notice of why I'm being denied the care I felt I needed? It says she has 48 hrs to respond. I called my case manager today and told her from now I want everything in writing from my onc as to her decisions concerning my care...especially since she doesn't bother to talk to me. I was at my cancer center today and my onc KNOWS I'm concerned about a new node in the clavical area & she ignored me again. She also refused my CA 27.29 again today. Whatever. (Thank you Brenda!) Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.