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Re: Who do I call, what do I do?!!!
Chelee
I too found that putting things on paper and adding facts gets their attention. I used lots of articles on the synergy between Tykerb/Herceptin when appealing the insurance company...all I got from people here on the board.
I also kept reminding them that this is a quality of life issue, and they were not looking at my interests in sustaining my life.
As far as the cancer legal resource center, i am sure they are good, but they are just now calling me back from way over a month ago...they are not an option when you need help fast. So at least right now, it looks as though you will get the herceptin, I would push more to get the Tykerb added, and worry about the tumor markers later....you need the herceptin, you need the hip fixed, the Tykerb would be a great addition, the tumopr markers can wait till after the surgery....concentrate and focus on the positives (I know they are few and far between) and take one hurdle at a time, when they all pile up, they seem insurmountable, but one at a time you can and will get through it.
You have received so many good suggestions, try to accomplish all you can, and relax a little, all this stress does not help your healing or your problems, it doesnt hurt those you are fighting with, it hurts you!
Sending a big hug Chelee
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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