|
Re: Trt stopped, & now a wheelchair & walker...
Hey Chelee,
Just wanted to let you know that when I did Tykerb/Herceptin I rarely had diarrhea and got no rash at all.
On the other hand, I seem to be having a rougher time than some on TCH.
It just goes to show we all react differently--I've read some posts where women have to stop Tykerb due to the side effects. The only issues I had with Tykerb was some fatigue and mouth sores which fall more into the uncommon side effects......
I was concerned about the impact all these drugs, including chemo, would have on my bones fusing properly in my neck since I had surgery in April of this year. I have metal and bone in my neck for fusion at C5/6 and C6/7.
Just wanted to share even though the procedures are probably different.
My neruosurgeon told me not to worry about it, he thought it would be fine.
One thing they did give me was a bone growth stimulator that I wore 4 hours every day for the first 6 weeks. I'm not sure if you will be dealing with bone fusion but wanted to pass that along. I would think it would work for any bone, not just the neck.
If this is something your doctor feels would help, and you can't get your insurance to pay for it, I would be more than happy to loan mine to you. They cost over $5,000 and my insurance paid for it.
Take care of yourself 
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
|