HER2 Support Group Forums - View Single Post - Er- can turn pos after Herceptin

bejuce · 11-04-2009, 05:04 PM

Rich,

Thank you so much for all of your postings. I have been following the boards daily (from my iPhone, what a great tool to have) and, in particular, the recent postings about Tamoxifen synergies and ER-/ER+ changes.

I' slightly ER+ (5%) and some doctors/researchers would consider this ER-. Either way, my oncologist at Stanford put me on Tamoxifen shortly after I finished rads. We're being as aggressive as we can.

Now, I'm taking Tamoxifen together with Herceptin, and if I understand all the recent postings correctly, this can actually be a good thing?

Thank you so much and I wish you and your mom all the best!

11-04-2009, 05:04 PM	#2
bejuce Senior Member Join Date: May 2009 Posts: 510	Re: Er- can turn pos after Herceptin Rich, Thank you so much for all of your postings. I have been following the boards daily (from my iPhone, what a great tool to have) and, in particular, the recent postings about Tamoxifen synergies and ER-/ER+ changes. I' slightly ER+ (5%) and some doctors/researchers would consider this ER-. Either way, my oncologist at Stanford put me on Tamoxifen shortly after I finished rads. We're being as aggressive as we can. Now, I'm taking Tamoxifen together with Herceptin, and if I understand all the recent postings correctly, this can actually be a good thing? Thank you so much and I wish you and your mom all the best! __________________ ER+ (30%)/PR-/HER-2+, stage 3 Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding. March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin 08/12/09 - bye bye boobies (bilateral mastectomy) 08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best! September-October 09: rads with daily Xeloda 02/25/10 - Cholecystectomy 05/27/10 - Bone scan clear 06/14/10 - CT scan clear, ovarian cyst found 07/27/10 - Done with Herceptin! 02/15/11 - MVA-BN HER-2 vaccine trial 03/15/11 - First CA 15-3: 12.7 and normal, yay! 10/01/11 - Bone scan and CT scan clear, fatty liver found now on Tamoxifen and Aspirin