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Re: Neratinib Trial 09
Hi MA, I can only imagine the mixed emotions you have about the possible side affects, yet the excitment of the actually benefit you could have.  So far you & your onc have done a great job of going after "it" aggressively. There is alot to be said about peace of mind and knowing you did everything available to keep cancer from recurring...so I admire you...and personally want to thank you for doing this. You are part of a study that can, & hopefully will help so many others woman that will be unfortunetly dx. These newer trts are so important as I don't have to tell you. I am so proud of you...way to go. MA...you went after your bc with both guns blazing & you haven't stopped...this just proves it! Good luck and keep us updated. Big hug coming your way! You go girl.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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