HER2 Support Group Forums - View Single Post - Tykerb, Herceptin combo instead of Navelbine?

Chelee · 10-30-2009, 05:04 PM

Pam, Due to the pain I am having...that did help to expedite matters. The case manager handling this for me called today & has me set-up to see a Ortho next wk which is quick for them. I just pray the Herceptin continues to knock down my markers till I get something going...this is stressful.

Lani, Thanks for all the information you looked up for me! I SO appreciate your time and trouble. The 1st option to go to Dr. Jeffrey Eckhardt at UCLA cannot be arranged due to my HMO. I paid out of pocket to see Dr. Slamon. I am hoping to change my insurance this Nov. so I won't have all these problems in the furture.
The case manager I called yesterday has set me up to see Dr. Dominic Femino next wk. Yes it is a small Dept which surprises me for COH...he is the only one that deals with these medical issues. The case manager that is handling this for me said that Dr. Dominic Femino tends to be very aggressive in his treatment. COH called today & has it all set-up. I hope to find out we can fix the hip later after I've completed some chemo? I will save the name of Dr. Jeffrey Eckhardt in case I need another opinion now, or in the furture. I would pay out of pocket again if need be. Thanks again for your help.

Chelee

10-30-2009, 05:04 PM	#3
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Tykerb, Herceptin combo instead of Navelbine? Pam, Due to the pain I am having...that did help to expedite matters. The case manager handling this for me called today & has me set-up to see a Ortho next wk which is quick for them. I just pray the Herceptin continues to knock down my markers till I get something going...this is stressful. Lani, Thanks for all the information you looked up for me! I SO appreciate your time and trouble. The 1st option to go to Dr. Jeffrey Eckhardt at UCLA cannot be arranged due to my HMO. I paid out of pocket to see Dr. Slamon. I am hoping to change my insurance this Nov. so I won't have all these problems in the furture. The case manager I called yesterday has set me up to see Dr. Dominic Femino next wk. Yes it is a small Dept which surprises me for COH...he is the only one that deals with these medical issues. The case manager that is handling this for me said that Dr. Dominic Femino tends to be very aggressive in his treatment. COH called today & has it all set-up. I hope to find out we can fix the hip later after I've completed some chemo? I will save the name of Dr. Jeffrey Eckhardt in case I need another opinion now, or in the furture. I would pay out of pocket again if need be. Thanks again for your help. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.