HER2 Support Group Forums - View Single Post - Tykerb, Herceptin combo instead of Navelbine?

Sheila · 10-29-2009, 04:29 PM

Chelee
I hope you get the Tykerb easier than I did....I did get the approval letter today saying the DENIAL HAD BEEN REVERSED BY THE REVIEW OF A MEDICAL DR. If you need info to get it approved, I have all mine. I just received mine last night via mail order, 150 tablets, 1 month supply. I just cant take it until I see if I can get into the T-DM1 trial as I have to be off everything for 2 weeks. I did have my Herceptin this week.....you need to tell them this is URGENT that you get the Tykerb....I would think you can be on it and have surgery...but you cant have surgery on the T-DM1 trials....it states that on the one I am applying for.

10-29-2009, 04:29 PM	#2
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Re: Tykerb, Herceptin combo instead of Navelbine? Chelee I hope you get the Tykerb easier than I did....I did get the approval letter today saying the DENIAL HAD BEEN REVERSED BY THE REVIEW OF A MEDICAL DR. If you need info to get it approved, I have all mine. I just received mine last night via mail order, 150 tablets, 1 month supply. I just cant take it until I see if I can get into the T-DM1 trial as I have to be off everything for 2 weeks. I did have my Herceptin this week.....you need to tell them this is URGENT that you get the Tykerb....I would think you can be on it and have surgery...but you cant have surgery on the T-DM1 trials....it states that on the one I am applying for. __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin