HER2 Support Group Forums - View Single Post - Her2 Overexpression Predicts Invasive BC

Sandra in GA · 10-28-2009, 08:12 PM

Margie,
Where did you have the original surgery? One of the reasons I decided to drive almost three hours for care at the Mayo Clinic in Jacksonville was because I was afraid that the care I would get in my local medical community would not be through and competent. I knew that it would take them weeks to get answers and then they would refer me somewhere and that would take even more time. Although I had never heard of HER2 before they started talking about treatments for different kinds of breast surgery, I had a feeling of urgency about the whole situation. I truly feel that that decision was life-saving for me. I know that you have sought excellent care and gone to great expense and inconvenience to travel for the vaccine. After all, once we know what we are up against, we have to be prepared to fight for our lives.

Remember, we can't change yesterday, we can only live in the present and plan for the furure. It seems to me that you are certainly making the most of the information you are learning now.

Take care and know that you have this tiger by the tail!

Sandra

10-28-2009, 08:12 PM	#5
Sandra in GA Senior Member Join Date: Aug 2009 Location: Moultrie, GA Posts: 431	Re: Her2 Overexpression Predicts Invasive BC - Shands Hosp. FL Margie, Where did you have the original surgery? One of the reasons I decided to drive almost three hours for care at the Mayo Clinic in Jacksonville was because I was afraid that the care I would get in my local medical community would not be through and competent. I knew that it would take them weeks to get answers and then they would refer me somewhere and that would take even more time. Although I had never heard of HER2 before they started talking about treatments for different kinds of breast surgery, I had a feeling of urgency about the whole situation. I truly feel that that decision was life-saving for me. I know that you have sought excellent care and gone to great expense and inconvenience to travel for the vaccine. After all, once we know what we are up against, we have to be prepared to fight for our lives. Remember, we can't change yesterday, we can only live in the present and plan for the furure. It seems to me that you are certainly making the most of the information you are learning now. Take care and know that you have this tiger by the tail! Sandra __________________ Diagnosed: 7/25/08 ~ age 63, no family history Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage Radiation: 25 rads Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012