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Chelee · 10-28-2009, 12:08 AM

Jackie, Yes, I have had my primary doc for 30 years...that is one of the things I mentioned I would hate to lose if I change groups. After the nonsense I ran into again today...I have to get into see my primary ASAP. My onc just isn't going to do anything for me...this is very clear. She was suppose to call me with a referral that specializes in orthopedic oncology Monday. Never happened. I made many calls and finally someone from her office calls me today with a orthopedic doctor which I looked up and he specializes in sports medicine...and repairs hands & wrist. His website is full of video's on how to repair different injuries to wrist & hands. (This does NOT seem like the type of orthopedic surgeon I was looking for!) I wanted a orthopedic oncologist that specializes in repairing bone that have mets.

I was down at my cancer center today to get my Herceptin/Zometa infusion. My onc walked in the infusion room twice and pretended not to see me. She knew I was there because she had other office manage come tell me to go see the orthopedic doctor she referred me to and come into see her on November 11th and let her know what he said. (I'm glad she isn't the least bit concerned about my hip and the fact I'm NOT on any chemo or anything to kick the crap out of cancer.) The least she could of done is walked over and talked to me since she is leaving me high and dry with nothing. I have no answers about my hip, chemo or what I should do...just watch time keep going by.

I got a copy of my MRI of femur/pelvic. There is a large heterogeneous mass in the intertrochanteric region of the proximal right femur measuring 6.4 x 4.7 cm. It also notes there are two borderline enlarged lymph nodes within the right inguinal region, measuring up to 1 cm. (The side of mass on femur is news to me...also she never mentioned anything about the enlarged lymph nodes to me.) I have to get my own reports to find anything out.

Chelee

10-28-2009, 12:08 AM	#28
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: I need hip surgery which STOPS my chemo! Jackie, Yes, I have had my primary doc for 30 years...that is one of the things I mentioned I would hate to lose if I change groups. After the nonsense I ran into again today...I have to get into see my primary ASAP. My onc just isn't going to do anything for me...this is very clear. She was suppose to call me with a referral that specializes in orthopedic oncology Monday. Never happened. I made many calls and finally someone from her office calls me today with a orthopedic doctor which I looked up and he specializes in sports medicine...and repairs hands & wrist. His website is full of video's on how to repair different injuries to wrist & hands. (This does NOT seem like the type of orthopedic surgeon I was looking for!) I wanted a orthopedic oncologist that specializes in repairing bone that have mets. I was down at my cancer center today to get my Herceptin/Zometa infusion. My onc walked in the infusion room twice and pretended not to see me. She knew I was there because she had other office manage come tell me to go see the orthopedic doctor she referred me to and come into see her on November 11th and let her know what he said. (I'm glad she isn't the least bit concerned about my hip and the fact I'm NOT on any chemo or anything to kick the crap out of cancer.) The least she could of done is walked over and talked to me since she is leaving me high and dry with nothing. I have no answers about my hip, chemo or what I should do...just watch time keep going by. I got a copy of my MRI of femur/pelvic. There is a large heterogeneous mass in the intertrochanteric region of the proximal right femur measuring 6.4 x 4.7 cm. It also notes there are two borderline enlarged lymph nodes within the right inguinal region, measuring up to 1 cm. (The side of mass on femur is news to me...also she never mentioned anything about the enlarged lymph nodes to me.) I have to get my own reports to find anything out. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.