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Chelee · 10-26-2009, 03:00 PM

Jacqueline, No I do not want to stay with this onc. It is a very longggg story. I have stepped on so many toes at this place due to my sub-standard care that I am not allowed to switch onc. No other onc at this place will see me. It got real messy when I filed a grievance with my HMO...turned into a nightmare.

I contacted every group, association, advocates, Dept of Managed care, several legal groups and even as far as an attorney. Depending on who I talked to things would improve for a short time and then my onc would go back to her old ways. All I can do at this point is wait for open enrollment and change groups. I am literally stuck. HMO's are only for people that don't get sick. Everyone thinks I can just switch onc...I can't...believe me I have tried everything in the book. I can change groups in January 2010 and with that change I LOSE my primary doctor of 30 yrs which I hate to even think of. I also lose all my other doctors in this group that I happen to like and trust. I am stuck and they know it...thats how they continue to get away with this crap. I have to fight for everything. I wish I could just change but it doesn't work that way unfortunetly for me. This is a nightmare for me in more ways then one.

Chelee

10-26-2009, 03:00 PM	#22
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: I need hip surgery which STOPS my chemo! Jacqueline, No I do not want to stay with this onc. It is a very longggg story. I have stepped on so many toes at this place due to my sub-standard care that I am not allowed to switch onc. No other onc at this place will see me. It got real messy when I filed a grievance with my HMO...turned into a nightmare. I contacted every group, association, advocates, Dept of Managed care, several legal groups and even as far as an attorney. Depending on who I talked to things would improve for a short time and then my onc would go back to her old ways. All I can do at this point is wait for open enrollment and change groups. I am literally stuck. HMO's are only for people that don't get sick. Everyone thinks I can just switch onc...I can't...believe me I have tried everything in the book. I can change groups in January 2010 and with that change I LOSE my primary doctor of 30 yrs which I hate to even think of. I also lose all my other doctors in this group that I happen to like and trust. I am stuck and they know it...thats how they continue to get away with this crap. I have to fight for everything. I wish I could just change but it doesn't work that way unfortunetly for me. This is a nightmare for me in more ways then one. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.