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Chelee · 10-26-2009, 01:38 PM

I'm trying to get in touch with Dr. Slamon's office since they said if I could not get into the TDM1 trial...their next choice for me would be to do Herceptin, Tykerb & Zometa. Which my onc & the COH onc both disagreed with?? They seem to think since there is no chemo in that combo it will not be effective? Herceptin alone has dropped my TM'ers...so adding Tykerb just might do it for me...and my thinking is I could still do that while dealing with this femur problem.

As to where the met is on the femur...my onc's message says the tumor is at the neck of the femur and that it needs to be supported with a pin in that area. I think I'll leave this decision up to the orthopedic surgeon and NOT my onc! Plus I don't trust her choice of orthopedic surgeons....she will find me the youngest newest guy on the block that needs patients. It looks like the sister hospital to mine is listed as one of the top hospitals in the nation for Orthopedic care for 3 yrs in a row. So I'm going to see if there is some way I can get my HMO to agree for me to be seen there?

Chelee

10-26-2009, 01:38 PM	#19
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: I need hip surgery which STOPS my chemo! I'm trying to get in touch with Dr. Slamon's office since they said if I could not get into the TDM1 trial...their next choice for me would be to do Herceptin, Tykerb & Zometa. Which my onc & the COH onc both disagreed with?? They seem to think since there is no chemo in that combo it will not be effective? Herceptin alone has dropped my TM'ers...so adding Tykerb just might do it for me...and my thinking is I could still do that while dealing with this femur problem. As to where the met is on the femur...my onc's message says the tumor is at the neck of the femur and that it needs to be supported with a pin in that area. I think I'll leave this decision up to the orthopedic surgeon and NOT my onc! Plus I don't trust her choice of orthopedic surgeons....she will find me the youngest newest guy on the block that needs patients. It looks like the sister hospital to mine is listed as one of the top hospitals in the nation for Orthopedic care for 3 yrs in a row. So I'm going to see if there is some way I can get my HMO to agree for me to be seen there? Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.