HER2 Support Group Forums - View Single Post - A shocker was DCIS then went to the bloodstream stage 4

Laurel · 10-25-2009, 07:04 PM

Margie,

Wow! DCIS to Stage IV! That is a real eye opener and very sobering indeed. Makes us all feel just that much more vulnerable, doesn't it?

I am truly sorry for all you have endured. Your experience must be shared so DCIS does not continue to be regarded in the cavalier manner it is today. At present they do not recommend Herceptin for DCIS Her2 positive BC. Last I heard it was being earnestly pondered but no formal recommendation adopted.

Margie, might I ask if your DCIS was Her2 positive? Thank you for your informative, and brave post. Welcome to our Her2 family.

10-25-2009, 07:04 PM	#3
Laurel Senior Member Join Date: May 2008 Location: Hershey, PA. Live The Sweet Life! Posts: 2,005	Re: A shocker was DCIS then went to the bloodstream stage 4 Margie, Wow! DCIS to Stage IV! That is a real eye opener and very sobering indeed. Makes us all feel just that much more vulnerable, doesn't it? I am truly sorry for all you have endured. Your experience must be shared so DCIS does not continue to be regarded in the cavalier manner it is today. At present they do not recommend Herceptin for DCIS Her2 positive BC. Last I heard it was being earnestly pondered but no formal recommendation adopted. Margie, might I ask if your DCIS was Her2 positive? Thank you for your informative, and brave post. Welcome to our Her2 family. __________________ Smile On! Laurel Dx'd w/multifocal DCIS/IDS 3/08 7mm invasive component Partial mast. 5/08 Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH 0/5 nodes 4 AC, 4 TH finished 9/08 Herceptin every 3 weeks. Finished 7/09 Tamoxifen 10/08. Switched to Femara 8/09 Bilat SPM w/reconstruction 10/08 Clinical Trial w/Clondronate 12/08 Stopped Clondronate--too hard on my gizzard! Switched back to Tamoxifen due to tendon pain from Femara 15 Years NED I think I just might hang around awhile....