HER2 Support Group Forums - View Single Post

Chelee · 10-24-2009, 06:56 PM

Rich, I had questions too because of my other medical problems. I had my onc run a PET/CT which showed increased uptake in my right hip...so she sent me to have a X-ray of that hip. She said that verified it was bone mets. I was NOT happy with a plain old X-ray especially with my scoliosis and dx of bursitis. She asked what I expected her to do? I said run a bone scan or MRI like most onc's would do. I just had the MRI of femur and ilium last Thursday...so it has to be bad if she is calling me on a Saturday. (She never calls me.)

I didn't get to talk to my onc today since she called early and left it on my machine. So I don't know how much delay there will be? That is a BIG concern to me. Dr. Slamon wanted me started on something soon. So did my onc...and now this. I know my Mother had at two seperate times rods put in her hips and each time it was a 3 month recovery...so I am beyond stressed. I might try calling Dr. Slamons office and see what he suggest? I can't imagine going another 3 months or more with nothing. I do know the Herceptin loading dose alone did drop my markers...so if I could add tykerk or something...that might work? What a nightmare.

Chelee

10-24-2009, 06:56 PM	#9
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: I need hip surgery which STOPS my chemo! Rich, I had questions too because of my other medical problems. I had my onc run a PET/CT which showed increased uptake in my right hip...so she sent me to have a X-ray of that hip. She said that verified it was bone mets. I was NOT happy with a plain old X-ray especially with my scoliosis and dx of bursitis. She asked what I expected her to do? I said run a bone scan or MRI like most onc's would do. I just had the MRI of femur and ilium last Thursday...so it has to be bad if she is calling me on a Saturday. (She never calls me.) I didn't get to talk to my onc today since she called early and left it on my machine. So I don't know how much delay there will be? That is a BIG concern to me. Dr. Slamon wanted me started on something soon. So did my onc...and now this. I know my Mother had at two seperate times rods put in her hips and each time it was a 3 month recovery...so I am beyond stressed. I might try calling Dr. Slamons office and see what he suggest? I can't imagine going another 3 months or more with nothing. I do know the Herceptin loading dose alone did drop my markers...so if I could add tykerk or something...that might work? What a nightmare. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.