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Jackie07 · 10-24-2009, 04:37 PM

Hi,

Herceptin is notorious for 'causing' heart failure because it has a potential to damage either the heart valves or the heart muscles. Be sure to exercise regularly to keep your heart strong. Some members on the board took 'enalarpri' to increase their MUGA score.

Brain mets are really not that hard to control/eradicate if found early. Even if it gets too big for Gamma knife, a brain surgery is really not as bad as it sounds - especailly in this day and age. Chemo actually could damage our brain more. And our brain has a plasticity that it regenerates and reconnects if we keep it active (by exercising physically and mentally.) Remember we don't use but 3-5 % of our brain cells - just a matter of keeping them well connected.

I remember how scared I was when I was told about my first huge brain tumor. I can understand how you are feeling right now. But it is very doable. And many of the brave ladies on this board have had good results with either Cyberknife or Gamma-knife plus some with traditional surgery.

10-24-2009, 04:37 PM	#4
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,809	Re: Bran tumor after 8 years on Herceptin Hi, Herceptin is notorious for 'causing' heart failure because it has a potential to damage either the heart valves or the heart muscles. Be sure to exercise regularly to keep your heart strong. Some members on the board took 'enalarpri' to increase their MUGA score. Brain mets are really not that hard to control/eradicate if found early. Even if it gets too big for Gamma knife, a brain surgery is really not as bad as it sounds - especailly in this day and age. Chemo actually could damage our brain more. And our brain has a plasticity that it regenerates and reconnects if we keep it active (by exercising physically and mentally.) Remember we don't use but 3-5 % of our brain cells - just a matter of keeping them well connected. I remember how scared I was when I was told about my first huge brain tumor. I can understand how you are feeling right now. But it is very doable. And many of the brave ladies on this board have had good results with either Cyberknife or Gamma-knife plus some with traditional surgery. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe