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Re: taxol/carbo/herceptin not working
Thanks for all the suggestions and offers to stay with you if I got into an out of state trial site!
To comment on some of the suggestions:
1) taxotere - I had so many awful side effects the 6 months I was on it I would only agree to take that again as a LAST resort. Pleural effusions - could hardly breathe, tear duts ruined resulting in several eye surgeries and jones tubes, severe problems with eating - everything tasted rancid, very weak, tired, etc.
2) abraxane - my onc. doesn't want to use it yet since I've been on taxol now for a long time - will keep it for down the road.
3) aromasin, arimidex - & others in that category - my onc. doesn't want to give that along with a chemo. He says the work on different principles. The chemo working best on fast growing cells, the hormonals slowing down the growth/divisions so they don't mix really effectively. He said he'd be willing to put me back on it at some point when I'm not also doing a chemo (Lord knows when that might be!) even though when I was on femara, and then faslodex they didn't work for me anyway.
4) I'll see what the research nurse says next week, but I can't find a t-dm1 that looks like I qualify, so guess it will be the navelbine. I hope I can get a year of stable out of it like last time - don't know if that's possible but it would be wonderful. Then maybe there'd be a t-dm1 opening for me.
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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