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Midwest Alice · 10-21-2009, 05:19 PM

Hi Everybody, I have been just a reader lately and not posting. I have been having a hard time. I have some questions for my her2family.

First, great news:
MUGA up 11 points!!!!! Losing 30 lbs. really did help(I think)

PET and MRI and other test came back "good" the Dr said.
So I"M 18 months and NED!!!
He and She said I'm doing so well I can stop every 3 week Herceptin and 3 month Zometa.

I went along with stopping the Zometa and got him to agree to staying on Herceptin till April and we would talk about it again.

First question: I became a IV 1/09. and they told me I would be on Herceptin as long as it was working. They said they think I was IV from the start.
1/09Whole body scan: sclerotic bony metastases in the left 6th and right 7th ribs.
MRI of spine:Several small enhancing lesions outlined above are suspicious for treated metastases.

I am not sure when I will see the actual reports from my test. But I was told that nothing is there. The Dr. said that "since they were gone now" that confirms that they were cancer. So I am for sure a IV.

Would you stop Herceptin?

Any thoughts on this would be great.

Love and hugs to all,

10-21-2009, 05:19 PM	#1
Midwest Alice Senior Member Join Date: Dec 2008 Location: Southern Indiana Posts: 455	Dr thinks I should stop Herecptin? Hi Everybody, I have been just a reader lately and not posting. I have been having a hard time. I have some questions for my her2family. First, great news: MUGA up 11 points!!!!! Losing 30 lbs. really did help(I think) PET and MRI and other test came back "good" the Dr said. So I"M 18 months and NED!!! He and She said I'm doing so well I can stop every 3 week Herceptin and 3 month Zometa. I went along with stopping the Zometa and got him to agree to staying on Herceptin till April and we would talk about it again. First question: I became a IV 1/09. and they told me I would be on Herceptin as long as it was working. They said they think I was IV from the start. 1/09Whole body scan: sclerotic bony metastases in the left 6th and right 7th ribs. MRI of spine:Several small enhancing lesions outlined above are suspicious for treated metastases. I am not sure when I will see the actual reports from my test. But I was told that nothing is there. The Dr. said that "since they were gone now" that confirms that they were cancer. So I am for sure a IV. Would you stop Herceptin? Any thoughts on this would be great. Love and hugs to all, __________________ Alice 04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53 06/08, 4 A/C, Neulasta 08/08, Herceptin/tax 12 every week 10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks 11/08 33Rads; 12/08 MUGA 48 2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove 4/09 Brain MRI - CLEAR; MUGA 54 7/09 chest ultrasound, 10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!! 1/11 Hip replacement 7/11 Hip 2 replacement 4/12 4 years!! Herceptin 6/12 start reconstruction finish in 12/12 2/14 Herception - 6 years!!! 1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you can stand up under it."