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Mary Anne in TX · 10-20-2009, 06:10 PM

Hi Terri! I go to STOH (South TX Oncology & Hemotology) in San Antonio. My Dr. helped to start the clinic and has been wonderful! And you've probably noticed that I feel that I've had incredible care and treatment! I have been treated so kindly and with such respect. But most importantly, I received the treatment that I so wanted. During the first year of treatment, I checked out the treatment protocals of other places (Anderson in Houston for 1 since it is 3 1/2 hours away also) and ones in New York and California. I found that for my diagnosis, age, and past medical history, I was getting the treatment I might have gotten in other places, if treated agressively as I wished for. I feel very, very fortunate. This trial would just be the frosting on the cake for me! I know there are no promises and I expect none, but I do want to do my part. And I'd love to be able to help find out if another drug could hold this stupid disease away for more years for us all. Best wishes on Ruth's decision. ma

10-20-2009, 06:10 PM	#13
Mary Anne in TX Senior Member Join Date: Jun 2006 Location: San Antonio, TX Posts: 2,357	Re: Neratinib Trial Hi Terri! I go to STOH (South TX Oncology & Hemotology) in San Antonio. My Dr. helped to start the clinic and has been wonderful! And you've probably noticed that I feel that I've had incredible care and treatment! I have been treated so kindly and with such respect. But most importantly, I received the treatment that I so wanted. During the first year of treatment, I checked out the treatment protocals of other places (Anderson in Houston for 1 since it is 3 1/2 hours away also) and ones in New York and California. I found that for my diagnosis, age, and past medical history, I was getting the treatment I might have gotten in other places, if treated agressively as I wished for. I feel very, very fortunate. This trial would just be the frosting on the cake for me! I know there are no promises and I expect none, but I do want to do my part. And I'd love to be able to help find out if another drug could hold this stupid disease away for more years for us all. Best wishes on Ruth's decision. ma __________________ MA in TX. Grateful for each and every day.... Diag. 12/05 at age 60 Stage II, Grade 3, 4.5 cm primary tumor ER/PR- Her2 +3 strongly positive Her2 by FISH 7.7 amplified vascular invasion Ki67 20% borderline Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew April '06 Rt Modified Radical Mas, 7 of 9 nodes positive April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense) Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense) Radiation & Herceptin Jan. 22 - March 1, 2007 Finished Herceptin Dec. 10 '08! One extra year. Port removed August, 2012. 8 1/2 years since diagnosis! 5 1/2 Years NED!