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Rich66 · 10-10-2009, 10:53 PM

I think maybe previous experience influences trust in doctors. If someone has never had a reason to question docs prior to cancer dx, they are probably going to go along with things. I really wanted to be a pssive supporter of my mom as she just went with the treatments. Unfortunately, things went a bit off the rails from the beginning and I ended up neck deep in things. At this point, I've seen questionable situations at every institution, with every doctor. Just a matter of degree.
But yes, after initial diagnosis (11/04), I took mom for a second opinion and saw that when the onc read the pathology, he scrambled his nurse to arrange to have the tissue tested for Her2. Found this website shortly after. I'd love to share consult notes at Mayo where another onc basically said I was overreacting regarding HER2 status and he took extra time to set me straight. Another onc at a "progressive" NCI academic facility folded his arms declaring he would not administer Herceptin off label in adjuvant. Such informed forward thinking.

10-10-2009, 10:53 PM	#11
Rich66 Senior Member Join Date: Feb 2008 Location: South East Wisconsin Posts: 3,431	Re: Hard to Believe !! I think maybe previous experience influences trust in doctors. If someone has never had a reason to question docs prior to cancer dx, they are probably going to go along with things. I really wanted to be a pssive supporter of my mom as she just went with the treatments. Unfortunately, things went a bit off the rails from the beginning and I ended up neck deep in things. At this point, I've seen questionable situations at every institution, with every doctor. Just a matter of degree. But yes, after initial diagnosis (11/04), I took mom for a second opinion and saw that when the onc read the pathology, he scrambled his nurse to arrange to have the tissue tested for Her2. Found this website shortly after. I'd love to share consult notes at Mayo where another onc basically said I was overreacting regarding HER2 status and he took extra time to set me straight. Another onc at a "progressive" NCI academic facility folded his arms declaring he would not administer Herceptin off label in adjuvant. Such informed forward thinking.