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this is all so true...we are so lucky here to have everyone questioning, researching, learning like mad...and then sharing everything we've got!!! I have learned more here than anywhere else...and have also learned to STAND UP FOR MYSELF and to TRUST MY GUT...something that alot of doctors find very threatening. It is MY life...c'mon!!! Thanks for this post, we all need to be strong and get LOUD!!! XO Suzan

__________________

Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!

10-08-2009, 07:47 PM	#10
suzan w Senior Member Join Date: Sep 2005 Location: Naples FL Posts: 1,747	Re: We need to know.... this is all so true...we are so lucky here to have everyone questioning, researching, learning like mad...and then sharing everything we've got!!! I have learned more here than anywhere else...and have also learned to STAND UP FOR MYSELF and to TRUST MY GUT...something that alot of doctors find very threatening. It is MY life...c'mon!!! Thanks for this post, we all need to be strong and get LOUD!!! XO Suzan __________________ Suzan W. age 54 at diagnosis 5/05 suspicious mammogram-left breast 5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++ 6/14/05 bilateral mastectomy, node neg. all scans neg. Oncotype DX-high risk 8/05-10/05 4 rounds A/C 10/05 -10/06 1 yr. herceptin arimidex-5 years 2/14/08 started daily self administered injections..FORTEO for severe osteoporosis 7/28/09 BRCA 1 negative BRCA2 POSITIVE 8/17/09 prophylactic salpingo-oophorectomy 10/15/10 last FORTEOinjection RECLAST infusion(ostoeporosis) 6/14/10 5 year cancerversary! 8/2010-18%increase in bone density! no further treatments Oncologist says, "Go do the Happy Dance" I say,"What a long strange trip its been" 'One day at a time' 6-14-2015. 10 YEAR CANCERVERSARY! 7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use 6-14-16. 11 YEAR CANCERVERSARY!! 7-20-16 Prolia injection for severe osteoporosis 2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL. 6-14-17 12 YEAR CANCERVERSARY!! still suffering from CIU. 4 hospitilizations in the past year as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!! 6-14-18 13 YEAR CANCERVERSARY!! NED!!