HER2 Support Group Forums - View Single Post - Chelee's third opinion

Chelee · 10-08-2009, 05:53 PM

I have been getting all my medical records together for my appt. with Dr. Slamon. I was reading all my onc "notes" and she is so FULL of herself. So much of what she says is just not true. She also takes credit for everything I had to fight for and push to get. She's something else.

I've mentioned this Her2 board before & she see's it as just a little "chat" room & that's how it's worded in her notes. She has always told me to stay off the internet! To limit my on time here. (Since when is it NOT good to research & stay on top of all the latest treatments!) I see mentioned in her "notes" many times that I was on the internet again...and mentions that I was on some Her2 board. (I've tried so many times to explain what this board is but she has no interest & won't listen.)

But I find it funny because if Dr. Slamon reads her notes about me being on "some Her2 board"...he ought to know exactly which board she is talking about. My onc it making light of this board like it's ridiculous. Dr. Slamon has met so many of us from this board little does my onc know. (Jokes on her.)
She really seems to have a problem with me going online now that I've read all her notes. Ha!

Chelee

10-08-2009, 05:53 PM	#22
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Chelee's third opinion - Dr. Slamon! I have been getting all my medical records together for my appt. with Dr. Slamon. I was reading all my onc "notes" and she is so FULL of herself. So much of what she says is just not true. She also takes credit for everything I had to fight for and push to get. She's something else. I've mentioned this Her2 board before & she see's it as just a little "chat" room & that's how it's worded in her notes. She has always told me to stay off the internet! To limit my on time here. (Since when is it NOT good to research & stay on top of all the latest treatments!) I see mentioned in her "notes" many times that I was on the internet again...and mentions that I was on some Her2 board. (I've tried so many times to explain what this board is but she has no interest & won't listen.) But I find it funny because if Dr. Slamon reads her notes about me being on "some Her2 board"...he ought to know exactly which board she is talking about. My onc it making light of this board like it's ridiculous. Dr. Slamon has met so many of us from this board little does my onc know. (Jokes on her.) She really seems to have a problem with me going online now that I've read all her notes. Ha! Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.