HER2 Support Group Forums - View Single Post - I'm off the T-DM1 trial

Lori R · 10-02-2009, 06:46 AM

Dear Barbara,
Sorry to hear about this rare side effect. We all know how special you are but now was not the time to be unique.

Who would make a decision about taking a break and then possibly going back on T-DM1? Would you need to wait until the drug is FDA approved and then approach your Onc?

There are many more chem options, possibly use them, keep the mets stable and then jump back on in 2010.

Cheering you on!!!

10-02-2009, 06:46 AM	#4
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: I'm off the T-DM1 trial Dear Barbara, Sorry to hear about this rare side effect. We all know how special you are but now was not the time to be unique. Who would make a decision about taking a break and then possibly going back on T-DM1? Would you need to wait until the drug is FDA approved and then approach your Onc? There are many more chem options, possibly use them, keep the mets stable and then jump back on in 2010. Cheering you on!!! __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)