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Old 10-02-2009, 03:09 AM   #5
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: 2nd opinion question?

Hi Steph, No I didn't think to ask about a cancellation list...I was so darned disappointed when they gave me Oct. 20th. I knew I wouldn't get in tomorrow...but I seriously had no idea they would make it almost 3 wks away. (With the delay my onc caused me getting this authorization thru...that makes it a total of almost 6 wks wait time...that doesn't seem right when dealing with stage IV Her2 bc.) Let alone the yr since my TM'ers starting creeping up.

I know Her2 isn't considered slow growing so it's hard to sit and wait as you all know. But I am going to call them tomorrow and ask them to put me on that list. Thanks for the idea Steph...much appreciated. Who knows maybe I'll get lucky.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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