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Nancy L · 10-01-2009, 03:20 PM

Sheila,

Since you and I are in the same rare camp with our breast cancer returning to neck nodes and no place else, I want to give you some hope by telling you that Herceptin/Tykerb, as prescribed for me by Dr. Slamon, is working so far. After three months, the Pet/CT Scan shows the SUV which was 6.3 had decreased to approximately 3. The CAT scan dimension which was 2.5X2.2cm was less than 1 cm. My second PET/CT Scan showed nothing had changed. I will continue getting scans every three months because my tumor markers never have changed during all of this. My oncologist said they do not work as an indicator for everyone.

I had difficulty tolerating 1000mg of Tykerb daily so Dr. Slamon reduced my dosage to 750mg every evening. My primary side effects are fatigue, chronic diarrhea and a rash that comes and goes.

Good luck and please don't hesitate to contact me if you have any questions at all. Just as an FYI, I am having an implant placed in my paralyzed vocal cord at the end of October. I am hopeful this will help with material aspirating into my lungs causing inflammation and a cough. It should also make my voice stronger---I will let you know.

Hugs, Nancy

10-01-2009, 03:20 PM	#20
Nancy L Senior Member Join Date: Apr 2009 Location: La Quinta, Ca Posts: 253	Re: NAVELBINE NOT WORKING, New Game Plan Sheila, Since you and I are in the same rare camp with our breast cancer returning to neck nodes and no place else, I want to give you some hope by telling you that Herceptin/Tykerb, as prescribed for me by Dr. Slamon, is working so far. After three months, the Pet/CT Scan shows the SUV which was 6.3 had decreased to approximately 3. The CAT scan dimension which was 2.5X2.2cm was less than 1 cm. My second PET/CT Scan showed nothing had changed. I will continue getting scans every three months because my tumor markers never have changed during all of this. My oncologist said they do not work as an indicator for everyone. I had difficulty tolerating 1000mg of Tykerb daily so Dr. Slamon reduced my dosage to 750mg every evening. My primary side effects are fatigue, chronic diarrhea and a rash that comes and goes. Good luck and please don't hesitate to contact me if you have any questions at all. Just as an FYI, I am having an implant placed in my paralyzed vocal cord at the end of October. I am hopeful this will help with material aspirating into my lungs causing inflammation and a cough. It should also make my voice stronger---I will let you know. Hugs, Nancy