HER2 Support Group Forums - View Single Post - Tumor markers are up, & so is my anxiety!

Chelee · 09-21-2009, 10:54 PM

Hi Harrie, My onc is a general, but really specializes in breast cancer. I'd could write a novel on what I've been through at this place...there is so much to it no one could possible understand. I have contacted legal advice more then once since I've been there. Things got better after that and I was assigned a case manager that stepped in. The case manager talked to my onc well over 1 1/2 yrs ago and there was a big improvement. But now my onc is back to her old self...she's gotten comfortable again. Whats really frustrating she is not stupid...she is very knowlegable...but she sure lacks communications skills. She just wants you in and out of the exam room in 6 minutes and thats ridiculous. Something is going to change!

I had my PET/CT early this morning...I may be over reacting but I sure didn't like the look on the mans face that ran my PET/CT. Now I just have to wait till this Thursday to see my onc...darn am I anxious. I wish she would call me before then and tell me my scans are unremarkable. (Thats what I'm praying for.) Waiting sure sucks.

Chelee

09-21-2009, 10:54 PM	#39
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Tumor markers are up, & so is my anxiety! Hi Harrie, My onc is a general, but really specializes in breast cancer. I'd could write a novel on what I've been through at this place...there is so much to it no one could possible understand. I have contacted legal advice more then once since I've been there. Things got better after that and I was assigned a case manager that stepped in. The case manager talked to my onc well over 1 1/2 yrs ago and there was a big improvement. But now my onc is back to her old self...she's gotten comfortable again. Whats really frustrating she is not stupid...she is very knowlegable...but she sure lacks communications skills. She just wants you in and out of the exam room in 6 minutes and thats ridiculous. Something is going to change! I had my PET/CT early this morning...I may be over reacting but I sure didn't like the look on the mans face that ran my PET/CT. Now I just have to wait till this Thursday to see my onc...darn am I anxious. I wish she would call me before then and tell me my scans are unremarkable. (Thats what I'm praying for.) Waiting sure sucks. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.