HER2 Support Group Forums - View Single Post - Tumor markers are up, & so is my anxiety!

suzan w · 09-15-2009, 09:40 AM

I am so sorry you are dealing with all this anxiety...I can identify with every word you say. I really don't understand why oncologists/doctors/and anyone who-for a professional choice-deals with cancer patients is not overflowing with a calm, but LET'S GET ANYTHING YOU WANT TO ALLEVIATE YOUR FEARS attitude. This should be a no-big-deal...no-brainer. We are all scared to death (literally) of a recurrance. We all KNOW that early detection is KEY. I just do not understand the attitude of the medical community that says, "wait for symptoms to appear" and leaves us feeling like whiney brats. Hmmmmmph. Got that off my breastless chest. Fighting cancer is hard enough without having to fight the doctors and insurance companies for what we know is best for us. Sending good thoughts your wau, Chelee...even though I am sounding like a ranting maniac!!! XOX Suzan

09-15-2009, 09:40 AM	#4
suzan w Senior Member Join Date: Sep 2005 Location: Naples FL Posts: 1,747	Re: Tumor markers are up, & so is my anxiety! I am so sorry you are dealing with all this anxiety...I can identify with every word you say. I really don't understand why oncologists/doctors/and anyone who-for a professional choice-deals with cancer patients is not overflowing with a calm, but LET'S GET ANYTHING YOU WANT TO ALLEVIATE YOUR FEARS attitude. This should be a no-big-deal...no-brainer. We are all scared to death (literally) of a recurrance. We all KNOW that early detection is KEY. I just do not understand the attitude of the medical community that says, "wait for symptoms to appear" and leaves us feeling like whiney brats. Hmmmmmph. Got that off my breastless chest. Fighting cancer is hard enough without having to fight the doctors and insurance companies for what we know is best for us. Sending good thoughts your wau, Chelee...even though I am sounding like a ranting maniac!!! XOX Suzan __________________ Suzan W. age 54 at diagnosis 5/05 suspicious mammogram-left breast 5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++ 6/14/05 bilateral mastectomy, node neg. all scans neg. Oncotype DX-high risk 8/05-10/05 4 rounds A/C 10/05 -10/06 1 yr. herceptin arimidex-5 years 2/14/08 started daily self administered injections..FORTEO for severe osteoporosis 7/28/09 BRCA 1 negative BRCA2 POSITIVE 8/17/09 prophylactic salpingo-oophorectomy 10/15/10 last FORTEOinjection RECLAST infusion(ostoeporosis) 6/14/10 5 year cancerversary! 8/2010-18%increase in bone density! no further treatments Oncologist says, "Go do the Happy Dance" I say,"What a long strange trip its been" 'One day at a time' 6-14-2015. 10 YEAR CANCERVERSARY! 7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use 6-14-16. 11 YEAR CANCERVERSARY!! 7-20-16 Prolia injection for severe osteoporosis 2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL. 6-14-17 12 YEAR CANCERVERSARY!! still suffering from CIU. 4 hospitilizations in the past year as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!! 6-14-18 13 YEAR CANCERVERSARY!! NED!!